It’s not called that anymore. It was in the beginning. Langerhans cell histiocytosis is a type of cancer that can damage tissue or cause lesions to form in one or more places in the body.
I’ve had this since I was 2.5 years old until my bonemarrow transplant in February 2012. I’ll most likely write a bit about that on a later date.
You basically have one or more of three types of LCH:
- Bone lesions (pretty much “eats” or dissolves bone tissue. Some times just making a seemingly random spot soft or completely dissolving it). I’ve, luckily, only had this.
If you only have bone LCH, it normally “burns out” itself over some years or during puberty. It’s not fatal. Skin and organ can be fatal. (Correct me if I¨’m wrong here, please)
The treatment is usually some type of chemo, cortisone tablets (prednisone) or radiation therapy.
I will go through my 20 year old period in another post. Kinda want to ease you in, I guess.