Histiocytosis X

It’s not called that anymore. It was in the beginning. Langerhans cell histiocytosis is a type of cancer that can damage tissue or cause lesions to form in one or more places in the body.

I’ve had this since I was 2.5 years old until my bonemarrow transplant in February 2012. I’ll most likely write a bit about that on a later date.

You basically have one or more of three types of LCH:

  • Bone lesions (pretty much “eats” or dissolves bone tissue. Some times just making a seemingly random spot soft or completely dissolving it). I’ve, luckily, only had this.
  • Skin
  • Organs

If you only have bone LCH, it normally “burns out” itself over some years or during puberty. It’s not fatal. Skin and organ can be fatal. (Correct me if I¨’m wrong here, please)

The treatment is usually some type of chemo, cortisone tablets (prednisone) or radiation therapy.

 

I will go through my 20 year old period in another post. Kinda want to ease you in, I guess.

 

Auli

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